Tomás is a 8 year old boy with spastic quadriplegic cerebral palsy. Born at 26 weeks he and his twin arrived unexpectedly into the world. Sadly his brother Seán passed away after 30 days.
Tomás is a bright, chatty boy but has no independent movement. As Tomás will require life-long supports and very costly equipment, his parents, Ann-Marie and Shane began a fundraising group called Tomorrow for Tomás.
Fundraising events from last year were put towards the purchase of a Powered Wheelchair costing €20,000. Tomás has been on a waiting list for this essential equipment since April 2015, so fingers crossed this will arrive soon!
This year Tomorrow for Tomás aims to raise funds so that the family home can be adapted for Tomás’ living and care needs, as well as ensuring safe and easy access about the house and garden on his new wheels!
This requires Disability Access Survey of the house and installing of an accessible washroom & toilet, accessible furniture for meal times installation of specially adapted switch devices, adapting doors and entrances for wheelchair access. The estimated cost of the above is €100,000.
As well as practical needs, Tomás requires on-going multi-disciplinary and medical care which is extremely costly. A huge shortfall in home care and respite provision for children with disabilities is all too common in Ireland.
Your support for Tomás will go a long way to ensuring this fun-loving boy gets the most out of life and improves his life-long supports. Tomás's journey can be followed on his blog and donations are gratefully received.